How are you feeling right now?
Life has a way of throwing curveballs, doesn’t it? Right now, I’m navigating one of the toughest seasons of my life, grappling with Stage 4 Chronic Kidney Disease (CKD) and the reality of being bedridden. Never had any issues with my kidneys before Covid hit me hard — twice.
If you’ve ever faced a chronic illness, you know it’s more than just physical—it’s an emotional and mental marathon. But amidst the fatigue, the doctor’s visits, (leaving the house, really), and the uncertainty, I’ve found a spark of purpose that’s keeping me going: starting a GoFundMe for something very special, my book, George and the Brave Eagle. Today, I want to share how I’m feeling, how my health shapes my days, and why this fundraiser is lighting a fire in my heart.
The Weight of Stage 4 CKD and Bedrest
Living with Stage 4 CKD is like carrying a heavy backpack you can’t take off. My kidneys are functioning at an eGFR between 15 and 29, which means they’re working hard but struggling to keep up. The symptoms—fatigue, swelling, and the constant need to monitor my diet and fluids—are a daily reminder that my body isn’t what it used to be. Fibro is now in the background of my concerns. Being bedridden adds another layer. Some days, I feel like I’m watching the world move on without me, stuck in a body that won’t cooperate. (I’ve had similar issues before, even being so drugged up from meds that I felt — and acted — like a zombie; thankfully, I don’t have that issue. My mind is fairly clear, not 100% but satisfactory.) The fact that I’ve not met my 2-year-old great-grandchild in Missouri is excruciating. It’s frustrating, humbling, and sometimes isolating.
But here’s the thing: even on the hardest days, I’m learning to find meaning in small moments. Whether it’s a kind message from a friend, a quiet moment of reflection, or the chance to advocate for others, I’m reminded that my story isn’t over. And that brings me to George and the Brave Eagle and the GoFundMe campaign that’s giving me a renewed sense of purpose.
A Cause Bigger Than Myself: George and the Brave Eagle’s GoFundMe
George and the Brave Eagle is a book that carries strength, resilience, and hope. He’s facing his own battle, one that resonates deeply with me as someone navigating the challenges of kidney disease. George’s story is one of courage, but he needs our help to keep fighting. That’s why I’ve poured my heart into starting a GoFundMe campaign for this little book. It’s not just about raising money—it’s about rallying a community to show that teaching children about George is so critical for these young patriots.
The GoFundMe is a lifeline for the book, helping cover the financial needs for creating the story. Paying for a quality illustrator is quite expensive. So is marketing to get the book into those little hands. Every dollar raised is a step toward easing my burden and giving me the strength to keep going. (I have plans to publish my other manuscripts, and will need help in the way of financial aid, for quality illustrators.) For me, being part of this feels like a way to channel my own struggles into something positive. Even from my bed, I can make a difference. I can’t run marathons or climb mountains right now, or even attend church, but I can advocate, share, and inspire others to join this cause.
How Am I Feeling? A Mix of Hope and Determination
So, how am I feeling right now? Honestly, it’s a mixed bag. There are moments of exhaustion and frustration, where the weight of Stage 4 CKD and being bedridden feels overwhelming. But there’s also a fire in me—a determination to keep pushing forward, not just for myself but for others like readers of George and the Brave Eagle. Starting this GoFundMe has given me a purpose that transcends my own challenges. It’s a reminder that even in our toughest moments, we can lift others up.
I’m hopeful, too. Hopeful that this campaign will reach its goal, that my family and I feel the love and support of a community coming together, and that maybe, just maybe, my own journey with CKD will inspire someone else to keep fighting. I’m learning to embrace the small victories—each donation, each share, each message of encouragement feels like a win.
A Call to Action: Join Me in Supporting George and the Brave Eagle
If you’re reading this, I invite you to be part of something bigger. Please visit George and the Brave Eagle’s GoFundMe page at:
and consider contributing, even if it’s just a small amount. Share the campaign with your friends, family, and social networks. Every little bit helps, and together, we can make a real difference in the lives of children and parents.
Living with Stage 4 CKD and being bedridden has taught me that life’s challenges don’t define us—what we do with them does. Right now, I’m choosing to focus on hope, community, and the power of coming together for something like a children’s picture book, George and the Brave Eagle. I’m choosing to focus on leaving children a legacy of patriotism, bravery, and strength to overcome. How are you feeling right now? Maybe you’re inspired to join this cause or share your own story. Whatever it is, let’s keep the conversation going and support each other through the highs and lows.
Note: If you’d like to share your story or contribute to a blog like this, consider reaching out to organizations like the National Kidney Foundation or Renal Support Network, which often feature patient stories to inspire and connect the kidney community. And if you’re facing CKD yourself, know that you’re not alone—there’s a whole community out there ready to support you.
Shirley
© 2025, Shirley Ulbrich, S. M. Ulbrich, Pages Alight. All rights reserved. On republishing this post you must provide link to original post.
My thoughts are with you. I’ll check it out.
Thanks so much! Btw, I was in the process of writing YOU a note, but couldn’t find how to send you a screenshot. Anyway, you might want to check your mail list – it’s not working!